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What is the Australian Blood Cancer Registry? |
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Written by Administrator
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Thursday, 23 November 2006 |
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The Australian Blood Cancer Registry is a collection of detailed and accurate information on blood cancers. The information will form a central database or disease registry.
The information will be used to improve the capacity of clinicians, patients, their families, carers and the government to make informed and timely decisions on the management of blood cancers. Blood cancers are cancers that arise in cells formed in the bone marrow including leukaemia, lymphoma and myeloma.
Why is a Registry being developed for blood cancers?Blood cancers including lymphoma, leukaemia and myeloma are a substantial health problem, more than 7,600 new cases are diagnosed each year in Australia. This represents about ten percent of all cancers. In particular the world-wide incidence of Non-Hodgkin’s Lymphoma is rising by three per cent each year in developed countries. This includes Australia, which has a high incidence rate relative to many other countries. While the basic details on who gets blood cancers are collected already, we do not have the more detailed information that is needed to improve treatment outcomes and management. Yet we know that many of these diseases are potentially curable. Survival depends on delivery of prompt and customised treatment depending on the stage of disease and prognostic factors. An Australian Blood Cancer Registry will help provide this essential information for research and improved treatment outcomes. |
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Last Updated ( Wednesday, 20 June 2007 )
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Written by Administrator
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Thursday, 23 November 2006 |
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In September 2005, unanimous support for the development of the ABCR was received from 37 representatives of clinical, research, academic, consumer, support and government organisations, pathology laboratories, pharmaceutical representatives and software developers. Enthusiastic and recognised experts have been recruited to the Project Management and Clinical Reference Groups to guide the ABCR development. Meetings are held on a regular basis and a governance framework has been established. The Project Management Group is Co-Chaired by Dr David Joske, Head - Department of Haematology, Sir Charles Gairdner Hospital, Perth and Dr John Seymour, Head - Leukaemia and Lymphoma Service, Peter MacCallum Cancer Center, Melbourne.
A number of the State Cancer Registries are represented on the Clinical Reference Group. Work on a number of initiatives is being progressed in close association with the State Cancer Registries to build on existing resources. |
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Last Updated ( Wednesday, 20 June 2007 )
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